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My Chiari Life: Words Are Hard

Words are hard. That's just a fact of life, right? But lately, that haa been even more true for me. Words are so hard! I can't remember basic words that I use every day. 

Not only words, but also names! The other day I was talking to my mom about one of my BEST FRIENDS.  I looked at her with complete desperation, I forgot her name! I began to lost everything about her. What she does as a living. Where she lives now, her parents name. Her starting position on the high school basketball team, her sisters name, how amazing she looks in red lipstick. At this point in tears because I truly don't know her name. Common mom! You know her!!!! My mom is now giving me crazy eyes because she knows her and I should know her name. My mom eventually told me her name and I was fine, but- names are hard. 

Brain fog is a side effect of Chiari that most Chiarians joke about, but it is also one of my biggest fears. When the brain fog hits and I am in public and now just look stupid. Well, yup- that's me again! 

Other things that are back: 
  • tight shoulders and muscles
  • Muscle spasms (turns out it might be because I am taking the wrong dose of magnesium...) 
  • Did I mention brain fog? 
  • Tenitis 
  • Hiccups!!!!

I guess it just makes me nervous. I have talked all month about how good I am feeling, and now this. I remember how awful I've felt in the past. I know how I look, and I don't look sick. I know people don't get it. I don't want that life again. I have been living a very different life too, that you will see in the future posts. One without health insurance. So going to my neurologist is out. Another MRI is out. So, 
I guess just hope things go away after that last migraine (words are easier today, it's taken 2 weeks to get to this point in the post). 


I am just going to hold on to hope. And apply for some jobs.

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