Skip to main content

My Chiari Life: Words Are Hard

Words are hard. That's just a fact of life, right? But lately, that haa been even more true for me. Words are so hard! I can't remember basic words that I use every day. 

Not only words, but also names! The other day I was talking to my mom about one of my BEST FRIENDS.  I looked at her with complete desperation, I forgot her name! I began to lost everything about her. What she does as a living. Where she lives now, her parents name. Her starting position on the high school basketball team, her sisters name, how amazing she looks in red lipstick. At this point in tears because I truly don't know her name. Common mom! You know her!!!! My mom is now giving me crazy eyes because she knows her and I should know her name. My mom eventually told me her name and I was fine, but- names are hard. 

Brain fog is a side effect of Chiari that most Chiarians joke about, but it is also one of my biggest fears. When the brain fog hits and I am in public and now just look stupid. Well, yup- that's me again! 

Other things that are back: 
  • tight shoulders and muscles
  • Muscle spasms (turns out it might be because I am taking the wrong dose of magnesium...) 
  • Did I mention brain fog? 
  • Tenitis 
  • Hiccups!!!!

I guess it just makes me nervous. I have talked all month about how good I am feeling, and now this. I remember how awful I've felt in the past. I know how I look, and I don't look sick. I know people don't get it. I don't want that life again. I have been living a very different life too, that you will see in the future posts. One without health insurance. So going to my neurologist is out. Another MRI is out. So, 
I guess just hope things go away after that last migraine (words are easier today, it's taken 2 weeks to get to this point in the post). 


I am just going to hold on to hope. And apply for some jobs.
Labels:

Comments

Post a Comment

Popular posts from this blog

PSA: You Didn't Win Halloween & Neither Did I

Last night my social media feed was filled with photos of friends attending their weekend parties in their Halloween costumes. There were a couple families and friend groups who were the cast of Napoleon Dynamite, a hilarious couple who went as their dogs, Curious George and the man in the Yellow Suite, and even Tess and Emily Tyler (Mary-Kate and Ashley Olsen from Billboard Dad). People are so creative when it comes to Halloween costumes! I am so not! But then I saw a couple’s costume I was so unbelievable uncomfortable with. alloween It was on Snapchat. Two people, one had painted himself brown to depict a character, a “hero” from a TV show we all watched in high school. Not just face painted, but arms, neck, chest. Then they added the chains. This, to that couple was a costume, but this also has a name, and that name is “blackface”. Minstrel shows started in the mid to late 19 th century, where white actors would paint their face to depict blacks on stage. The acto
4 comments
Read more

Who Used All the Black Crayon?

Guys, I am used to about 14 views each post. That's it (which is weird, because I post every blog link to my family's Facebook group and there are 40 of us in there... Thanks guys!). I was not expecting that many hits on one post, but I got it, and it has sparked a lot of conversation that I feel to be very productive. I have been so honored by the respect I have been given from those who’s opinions differ from mine, and the dialogue we have been able to have on the matter of race in today's society. Some of the best conversations have come from the, "But why?" question. But why is that offensive? On Facebook I shared this Vox link , so I won't get into that, but I do want to take some time to talk about taking offense. Life is a collection of experience. After one is written into our book, the next experience will be affected because of it. In kindergarten, I had a true Corrina, Corrina experience in class, when someone asked, "Who used all
4 comments
Read more

VIDEO number 1!!

i know you all (that's pretty much just you Megan) are soooo excited to see this video! it is the best! PICTURE DAY haha... so he is just funny. he kinda talks in circles like me.. AND I LOVE WHEN HE FALLS OUT OF THE CHAIR! and that boy in his class? yeah he's just stupid! it's amazing!
3 comments
Read more